This is a good informative article on how CHD's and small children waiting for transplants are driving research in new Ventricular Assist Devices (VADs) that will work for smaller children. Bean was once a candidate for having to go on the Berlin Heart, a VAD that is not fully approved by the FDA, but is often given a "compassion" waiver to be used on smaller children because there are no alternatives in the U.S. at this point. Luckily, Bean improved before that happened - but other children need options available and this research is a hopeful look at some options. There are some links at the bottom for more information on the NIH program for devices as well as NIH information on CHDs.
Heart Pumps For Kids - Health News Story - WSOC Charlotte
This blog is named for my daughter's heart transplant. In July, 2009, "Bean" received a new heart. It is my hope that this blog may help others going through major changes or living with major challenges.
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