I was reading Gwyneth Paltrow's blog Goop, which I love, even though its a little more high brow than my life. Its nice to dream though! Anyways, in early February, she had a post about a new campaign kicking off called "Meat Free Mondays". Yes, I said early February. I'm so far behind in emails, google reader reading, etc. that I am still back in early February. But, hopefully I will soon be able to bring my online life to within two weeks of my real-time life. We shall see. Back to Meat Free Mondays though. I have considered going vegetarian numerous times. I have even tried to actually do it a couple of times. But, in the end, I always come back to meat. I like meat. I like chicken, I like steak, I even like pork sometimes. But, I realize there are environmental reasons, health reasons and even some ethical reasons for not eating meat. Its just so difficult to give it up completely! But, this "Meatless Mondays" concept sounds doable. Very doable.
Meat Free Mondays was started in the UK and it has now moved in to the US. In all honesty, there are a lot of days when we don't have meat in our meals, but we would probably do ourselves good to give up meat at a meal where we would otherwise have it. The campaign is based in environmental reasons, but with Bean's heart, I am also aware of the health issues related to eating meat, especially red meat. Bean is not eating much meat at this point in life, but it is a good reminder to us to cut back on the red meat.
So, here's to Meat Free Mondays - or whatever day you choose it to be during the week. Its great for the environment and great for your health!
This blog is named for my daughter's heart transplant. In July, 2009, "Bean" received a new heart. It is my hope that this blog may help others going through major changes or living with major challenges.
Wednesday, March 3, 2010
Book Review - Danny the Dragon "Meets Jimmy" by Tina Turbin and Contest!
Today I have a special blog entry! I am reviewing a great new children's book called Danny the Dragon "Meets Jimmy" by Tina Turbin and illustrated by Aija Jasuna. The book is about a little boy Jimmy who finds a special shell at the beach and brings it home. Soon after getting the shell home, Danny the Dragon pops out of the shell with "bright red shoes," "a yellow backpack," and wings! Along with Danny the Dragon, Skipper, a little frog with goggles and a note pad joins Jimmy's family as well. The book has a great, simple story for small children and beginner readers. It teaches subtle lessons, like helping the family with chores and sharing meals with families and friends. The illustrations are incredible. They are bright, colorful, and filled with joy. The book offers something for every child's likes - for those who love their dinosaurs and dragons, there is Danny, for those who love magic and mystery, there is mystery of the talking shell and the special way that Danny and Jimmy are able to escape the shell and then return to the shell, for those who just love looking at pictures, the large pages are full of detail, color and joy!
In addition to being a successful children's book author, Tina Turbin is also an advocate for gluten free living for the purpose of dealing with allergies, celiac disease, and related health issues. You can find more information on this part of her life at Gluten Free Help. The book is only the first step in a series of Danny the Dragon items. I will soon be doing a review of the CD and the DVD related to the book. In addition to these items, she is working on related cookbooks as well. The official Danny the Dragon website offers direct purchase links for the book and the CD as well as some wonderful contests for children AND parents or you can go to Amazon to purchase the book or the CD. But, the CD is almost out of stock, so order soon if you're going to use Amazon! In addition to her author's page, Tina also has a twitter account where she posts information about celiac disease and gluten-free living.
In the interest of getting more people to check out Danny the Dragon, I am having a contest! I will give away three Danny the Dragon gift packs, with a Danny the Dragon pencil, a Danny the dragon sticker, a Danny the Dragon bookmark and a Danny the Dragon "Quite Please - I'm Reading" door knob sign, in a cute little zipper pencil bag! In order to be entered you must go to the Danny the Dragon website and then leave a comment here saying why you think Danny the Dragon sounds like a good addition to your child's library. You can get an additional entry by choosing to follow my blog! Just leave a second comment that you are following my blog and how you are following it (reader, blogspot follower, etc.) - if you are already following - just tell me how! I will choose the winners on March 10, 2010!
I am so happy to have this book on Bean's bookshelf! It is sure to give us many evenings of great reading and great visuals to go along with the reading! Thanks to the author for sending it to me to review. I look forward to reviewing the CD and DVD in the near future as well! Please check out the book and CD and support this wonderful, self-published author!
In addition to being a successful children's book author, Tina Turbin is also an advocate for gluten free living for the purpose of dealing with allergies, celiac disease, and related health issues. You can find more information on this part of her life at Gluten Free Help. The book is only the first step in a series of Danny the Dragon items. I will soon be doing a review of the CD and the DVD related to the book. In addition to these items, she is working on related cookbooks as well. The official Danny the Dragon website offers direct purchase links for the book and the CD as well as some wonderful contests for children AND parents or you can go to Amazon to purchase the book or the CD. But, the CD is almost out of stock, so order soon if you're going to use Amazon! In addition to her author's page, Tina also has a twitter account where she posts information about celiac disease and gluten-free living.
In the interest of getting more people to check out Danny the Dragon, I am having a contest! I will give away three Danny the Dragon gift packs, with a Danny the Dragon pencil, a Danny the dragon sticker, a Danny the Dragon bookmark and a Danny the Dragon "Quite Please - I'm Reading" door knob sign, in a cute little zipper pencil bag! In order to be entered you must go to the Danny the Dragon website and then leave a comment here saying why you think Danny the Dragon sounds like a good addition to your child's library. You can get an additional entry by choosing to follow my blog! Just leave a second comment that you are following my blog and how you are following it (reader, blogspot follower, etc.) - if you are already following - just tell me how! I will choose the winners on March 10, 2010!
I am so happy to have this book on Bean's bookshelf! It is sure to give us many evenings of great reading and great visuals to go along with the reading! Thanks to the author for sending it to me to review. I look forward to reviewing the CD and DVD in the near future as well! Please check out the book and CD and support this wonderful, self-published author!
Monday, February 15, 2010
New Blog Design - Thanks Gisele!
Some of you may have noticed my BEAUTIFUL new blog design! I wanted to let everyone know that this blog was designed by Gisele Jaquenod of the Gisele Jaquenod and Birdie blog and I won it in a contest on her blog! I was so excited to see the result. Gisele had me choose from some figures to include, and I chose the baby in the kitty costume because of Bean's love for our cat, Nosey! She was FANTASTIC to work with and very, very fast. If you are looking for blog design, or other types of design, please keep her in mind. I just clicked over to her blog to find her holding another contest for MOO minicards for your business or just for fun! I can tell you that she does great work and will definitely give you a product that you'll love! Check out all her different designs on her website and she even offers a number of FREE blog designs!
Thanks Gisele for making my blog a place I will love to visit!
Thanks Gisele for making my blog a place I will love to visit!
It Takes A Village
Well, as Oscar Wilde said, "It is always with the best of intentions that the worst work is done." Or, in my case, no work is done. Last week was really one that I would prefer to forget in many ways. It was scheduled to the hilt and I had a lot on my list of things to do and ended up getting few to none of them done. I didn't post daily as I was hoping to because I ended up with spotty internet at best for most of the week and just too many other things that I could not possibly put off doing. So, this took a backseat.
I had a panic attack last night realizing that I have not slept well for the past week, have a to-do list the size of a small continent, and not much in the way of energy or time management to get that small continent taken care of. But, I guess I'll just have to approach it with the "How do you eat an elephant?" strategy...answer...one bite at a time!
The picture up in the corner is Bean in her car seat at the Berkeley High School Speech and Debate tournament that I worked this weekend. She is not usually this happy in her car seat, but the photographer caught her in a good mood! It was a looooooong weekend. I was at the tournament for between 13-15 hours each day on Saturday and Sunday and I'm still here plugging along today. For those of you unfamiliar with Speech and Debate tournaments, they are like working a 40 hour work week in three days time - and it can definitely be painful. Luckily Bean had a good sleeping weekend, with only one 4:30 a.m. wake-up this morning. But, I'm still relatively exhausted and we have a three and a half hour drive back to Chico today at some point. Ugh....
But, let me get to the title of today's post. Although it also takes a village to run a Speech and Debate tournament...and in all honesty, I feel like it will take a village to get my life on schedule, I was referring to an article posted on the Congenital Heart Defect Support email list from the Star Tribune in Minnesota. The article, A Kid-Sized Niche, is a great example of what can happen when people discover their passion. I have discussed the "profitability gap" for pediatric medical devices on my previous blog, in "'Profitability Gap' Means Adult Treatment for Children", but I did not see the solution that Bradley Slaker saw in creating DesignWise Medical. Slaker has created a "nonprofit pediatric medical device company" that collaborates with Universities, retired engineers, law students, and others to create solutions for pediatric medical problems. The article says that Minnesota offers a unique environment with its identification as a "medical tech hotbed". But, I think its great that Slaker has found a way to produce these devices without them having to be profitable, offering parents like me some hope for solutions that will work. I also think its great that students at Universities are being involved in the creation, production and legal work involved in these devices. Perhaps some of them will be inspired to continue in this area.
I am looking forward to starting a new week that will hopefully be better then last week. I am not at all looking at an easier week this week, but at least I'm expecting the chaos that is sure to ensue and hoping to be able to deal with it a bit better then last week.
I had a panic attack last night realizing that I have not slept well for the past week, have a to-do list the size of a small continent, and not much in the way of energy or time management to get that small continent taken care of. But, I guess I'll just have to approach it with the "How do you eat an elephant?" strategy...answer...one bite at a time!
The picture up in the corner is Bean in her car seat at the Berkeley High School Speech and Debate tournament that I worked this weekend. She is not usually this happy in her car seat, but the photographer caught her in a good mood! It was a looooooong weekend. I was at the tournament for between 13-15 hours each day on Saturday and Sunday and I'm still here plugging along today. For those of you unfamiliar with Speech and Debate tournaments, they are like working a 40 hour work week in three days time - and it can definitely be painful. Luckily Bean had a good sleeping weekend, with only one 4:30 a.m. wake-up this morning. But, I'm still relatively exhausted and we have a three and a half hour drive back to Chico today at some point. Ugh....
But, let me get to the title of today's post. Although it also takes a village to run a Speech and Debate tournament...and in all honesty, I feel like it will take a village to get my life on schedule, I was referring to an article posted on the Congenital Heart Defect Support email list from the Star Tribune in Minnesota. The article, A Kid-Sized Niche, is a great example of what can happen when people discover their passion. I have discussed the "profitability gap" for pediatric medical devices on my previous blog, in "'Profitability Gap' Means Adult Treatment for Children", but I did not see the solution that Bradley Slaker saw in creating DesignWise Medical. Slaker has created a "nonprofit pediatric medical device company" that collaborates with Universities, retired engineers, law students, and others to create solutions for pediatric medical problems. The article says that Minnesota offers a unique environment with its identification as a "medical tech hotbed". But, I think its great that Slaker has found a way to produce these devices without them having to be profitable, offering parents like me some hope for solutions that will work. I also think its great that students at Universities are being involved in the creation, production and legal work involved in these devices. Perhaps some of them will be inspired to continue in this area.
I am looking forward to starting a new week that will hopefully be better then last week. I am not at all looking at an easier week this week, but at least I'm expecting the chaos that is sure to ensue and hoping to be able to deal with it a bit better then last week.
Sunday, February 7, 2010
Congenital Heart Defects Awareness Week Begins - Giving Thanks for those who Give Hope
Today kicks off a national campaign to raise awareness of congenital heart defects! Bean's problem was Dilated Cardiomyopathy - the cause is idiopathic AKA "we don't have a clue". Right now, as she is "creeping" across the living room floor towards me (she isn't quite crawling yet...she has a really big head), I think about how lucky we were to have someone as knowledgeable as the doctor who admitted her at Sutter Memorial in Sacramento. So, my focus this week is going to be on the doctors, nurses, surgeons, specialists, etc. who make survival of these little ones so much more probable than in the past. Some of them will be ones that Bean worked with directly, others will be those I hear about on the parents' listservs I am active on and still others will be those we would probably never hear about because they are doing research quietly in a lab somewhere. Hopefully, this will serve as an introduction to some of the people who can help families who feel helpless and give hope to those who feel hopeless.
After spending five days in our local hospital with what we thought was complications caused by RSV, Bean was transferred to Sutter Memorial's PICU because she was going to need to be on a ventilator to help her little lungs clear. We received a call as we were driving down from the admitting doctor, Daniel Falco. He told us he was going to have to intubate her (as we had already been told), but wanted to know if anyone had spoken to us about her heart. No one had. He told us it was five times its normal size and that Bean was a "sick little girl". My heart sank. When we arrived, he had intubated her and wanted to talk. He took us to a waiting room with bright murals and comfy chairs and there he told us that the intubation was complete but had been "a little harried" with Bean reacting negatively to the Ketamine he used to sedate her and she had almost stopped breathing. He was very honest and forthcoming and I think both Jason and I felt MORE confident in him because he was honest with us than less confident because something had gone wrong. He told us about her heart and that he was referring her to a cardiologist on staff who would be by to speak with us and he had ordered an EKG and an echocardiogram. At the time, I had heard these words, but had no idea what they were and no experience with these types of tests in the past. Dr. Falco sounded totally competent, he was confident in what he was saying and he had a way of sounding comforting despite the fact that he was telling us things that were totally disconcerting. He had a plan, he sounded determined and we felt confident that things were going to get done that needed to get done. This is, I think, a major factor in making the difference between a good doctor and a great doctor - if they can communicate effectively, make you feel totally confident in what they are doing AND get what needs to be done done, then they are great. If they get what needs to be done done, but makes you feel like you are in the dark or not sure of what or why things are happening then they are good doctors, but not great.
Dr. Falco was Bean's doctor for only a week. I believe he was a big reason she was transferred to Lucille Packard Children's Hospital so quickly. He had done both his residency and his fellowship there. In addition to his being a doctor at Sutter Memorial, he is also on the board of the Child Abuse Prevention Center. He has a pediatrics practice in Sacramento in addition to serving in the Critical Care area of the PICU at Sutter Memorial. He is an excellent doctor and I think was the first step in making Bean a survivor of a CHD. After writing this blog post, I realize that I want to let Dr. Falco know how I feel, so he will be receiving one of our Valentine's Day cards with Bean's picture on it and a note explaining my gratitude and appreciation. I only hope/wish that everyone can have a doctor like Dr. Falco if they have to go through discovering a child of theirs has CHD. Thanks Dr. Falco!
After spending five days in our local hospital with what we thought was complications caused by RSV, Bean was transferred to Sutter Memorial's PICU because she was going to need to be on a ventilator to help her little lungs clear. We received a call as we were driving down from the admitting doctor, Daniel Falco. He told us he was going to have to intubate her (as we had already been told), but wanted to know if anyone had spoken to us about her heart. No one had. He told us it was five times its normal size and that Bean was a "sick little girl". My heart sank. When we arrived, he had intubated her and wanted to talk. He took us to a waiting room with bright murals and comfy chairs and there he told us that the intubation was complete but had been "a little harried" with Bean reacting negatively to the Ketamine he used to sedate her and she had almost stopped breathing. He was very honest and forthcoming and I think both Jason and I felt MORE confident in him because he was honest with us than less confident because something had gone wrong. He told us about her heart and that he was referring her to a cardiologist on staff who would be by to speak with us and he had ordered an EKG and an echocardiogram. At the time, I had heard these words, but had no idea what they were and no experience with these types of tests in the past. Dr. Falco sounded totally competent, he was confident in what he was saying and he had a way of sounding comforting despite the fact that he was telling us things that were totally disconcerting. He had a plan, he sounded determined and we felt confident that things were going to get done that needed to get done. This is, I think, a major factor in making the difference between a good doctor and a great doctor - if they can communicate effectively, make you feel totally confident in what they are doing AND get what needs to be done done, then they are great. If they get what needs to be done done, but makes you feel like you are in the dark or not sure of what or why things are happening then they are good doctors, but not great.
Dr. Falco was Bean's doctor for only a week. I believe he was a big reason she was transferred to Lucille Packard Children's Hospital so quickly. He had done both his residency and his fellowship there. In addition to his being a doctor at Sutter Memorial, he is also on the board of the Child Abuse Prevention Center. He has a pediatrics practice in Sacramento in addition to serving in the Critical Care area of the PICU at Sutter Memorial. He is an excellent doctor and I think was the first step in making Bean a survivor of a CHD. After writing this blog post, I realize that I want to let Dr. Falco know how I feel, so he will be receiving one of our Valentine's Day cards with Bean's picture on it and a note explaining my gratitude and appreciation. I only hope/wish that everyone can have a doctor like Dr. Falco if they have to go through discovering a child of theirs has CHD. Thanks Dr. Falco!
Monday, February 1, 2010
Great Series of Blog Posts for the Month of February
Over at CHD-UK there will be a great series of blog posts celebrating stories of individuals who have experienced congenital heart defects. The first story is truly inspirational - a man who came back from near-death and heart surgery to complete an Iron Man Triathlon! Check the story of David Watkins out over at CHD-UK.
And just think - if David Watkins can complete an ironman triathlon, can't you complete 30 minutes of exercise today? Do it - for your heart!
And just think - if David Watkins can complete an ironman triathlon, can't you complete 30 minutes of exercise today? Do it - for your heart!
Happy Heart Month!
Just wanted to take a moment to wish every reader out there happy heart month! I will be dedicating daily posts this month to healthy hearts! Bean had a big, big heart, but it just didn't work right. She was lucky enough to receive the gift of a second heart that does work right! In honor of her donor and the donor's family, we will be sure to take very good care of this heart! At this age, that is pretty easy...but as she grows up, it will get more difficult. Both my hubby and I could do a little work on our own heart health! So, this will be a month of education on how to keep hearts healthy, how to improve the health of hearts that may not be as healthy and finally, how much of a miracle it is to celebrate Bean's first birthday thanks to someone else's generous heart. My resolution for this month was already to exercise at least once a day, so that fits right into the heart healthy focus for this month! But, I hope to find and offer any readers a lot of valuable information about keeping their heart healthy in the long-term!
So, Happy Heart Month! Take care of yours and be generous in giving love from it!
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