Although I was not able to go this year, I am really hoping to attend one of these picnics in the future (when Bean is a little older and can actually enjoy the activities and social connections). The California Heart Connection, a group started by two heart moms in Southern California, hosts an annual picnic for the families of children with Congenital Heart Defects. This year's picnic was the 10th one hosted by the group, with 80 families in attendance. The picnic offers families a way to connect with others who are going through similar experiences, but in a non-clinical setting. Its a great opportunity for both parents and children and a nice article was written about it in the Orange County Register, "Hope and help for ailing hearts."
In addition to hosting the picnic, the California Heart Connection has some great resources available on their website, ranging from help with insurance, support groups, printable forms, reports on research, etc. It is not only applicable to those in California, but much of it could be helpful to anyone dealing with a CHD!